As most of you know we
started the pump in March and then we were told
that we could start the continuous glucose monitor 6 months later so that it's
not so overwhelming learning it all together. Well tomorrow is the day....yes
it came early because they think we are ready! We are ready but I still as a
mom am concerned about how Nevaeh will deal with it tomorrow. She is so brave
with getting her pump site on, but between you and me the needle on the cgm is
MUCH bigger!!! I know she will be brave and please pray I will be as brave as
her putting it on her!
It's also stressful knowing how much this small piece of
life saving technology can cost! As most of you know from the fundraiser we had
back in March the pump, cgm, and monitor cost over $3000 out of pocket!!! We
were blessed to have raised $1010 of that! But after reading a comment from a
mother on a forum I read say that she wish she had the money to purchase a cgm
for her daughter before she passed away from Hypoglycemia (low blood sugar)
early one morning in between checks, Justin and I decided that we would make
payments on this life saving technology for the rest of our lives if thats what
it took!
For those who don't know the CGM (continuous glucose monitor) measures the glucose level
continuously around the clock (while she's wearing it) and will send those
readings to Nevaeh's pump wirelessly, as well as, to the MySentry monitor we will have
in our bedroom! It has AMAZING benefits (there's a long list of great things) like allowing us to know her blood
sugar is going up or down up to 30 minutes before it does!!! So that means I
won't have to worry as much (be up half the night) because if her blood sugar
drops the monitor in my bedroom will begin to alarm and will continue until I
have addressed the issue!!!
I can't explain how much freedom I think this will
give us all. Nevaeh because she will be able to sleep more restfully in her own
bed (and not have to worry if she is going low or not), and Justin and I because we will start getting more quality sleep! It will give us all a little more peace of mind!
Please continue to keep us in your prayers! Most
who have never experienced first hand don't realize the toll type 1 diabetes
has on every part of your life. I for sure had no idea, but every day you wake
up it is there and effects how and when you do things. We are fighters though
and my baby girl is strong and healthier than she was 8 months ago so I thank
God for that every day! Thank you for those who listened and are praying!!!
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